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CAN-ACT
  • Home Page
  • About CAN-ACT
    • Members and Committees
    • Enrollment Updates
  • Clinicians
    • About CAN-ACT
    • Apply for CAN-ACT
  • Patients and Families
    • About HTAD and CAN-ACT
    • Support
    • Patient Stories
  • Risk Calculators
  • Active Projects
  • News
  • English
    • Français

Support

Patient Advocacy and Support

Whether you’re newly diagnosed or navigating life with HTAD, support is out there. We’ve gathered trusted advocacy groups and clinics across Canada to help you and your family find care, connection, and community.

Patient Advocacy Groups

  • Loeys-Dietz Syndrome Foundation Canada
  • Marfan Foundation
  • vEDS collaborative
  • vEDS movement
  • Loeys-Dietz Syndrome Foundation
  • GenTAC Alliance
  • The John Ritter Foundation for Aortic Health
  • Aortic Hope
Find a Clinic

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CAN-ACT Partners

CAN-ACT is a national registry that promotes research, early diagnosis and improved access to treatment for these rare diseases.

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News
  • Upcoming CAN-ACT National Investigator Meeting – October 24, 2025
  • First CAN-ACT National Investigator Meeting

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