{"id":1870,"date":"2024-05-31T13:35:00","date_gmt":"2024-05-31T18:35:00","guid":{"rendered":"https:\/\/can-act.org\/premiere-reunion-nationale-des-chercheurs\/"},"modified":"2025-10-21T15:25:15","modified_gmt":"2025-10-21T20:25:15","slug":"premiere-reunion-nationale-des-chercheurs","status":"publish","type":"post","link":"https:\/\/can-act.org\/fr\/premiere-reunion-nationale-des-chercheurs\/","title":{"rendered":"Premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"1870\" class=\"elementor elementor-1870 elementor-1690\" data-elementor-post-type=\"post\">\n\t\t\t\t<div class=\"elementor-element elementor-element-40279f2d e-flex e-con-boxed e-con e-parent\" data-id=\"40279f2d\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-756a463e e-flex e-con-boxed e-con e-child\" data-id=\"756a463e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-750fdfcd e-flex e-con-boxed e-con e-child\" data-id=\"750fdfcd\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-44952245 e-con-full e-flex e-con e-child\" data-id=\"44952245\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-59669528 elementor-widget elementor-widget-heading\" data-id=\"59669528\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9845117 elementor-widget elementor-widget-image\" data-id=\"9845117\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"768\" height=\"576\" src=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/2024_event_4-768x576.jpg\" class=\"attachment-medium_large size-medium_large wp-image-1822\" alt=\"\" srcset=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/2024_event_4-768x576.jpg 768w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/2024_event_4-300x225.jpg 300w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/2024_event_4-1024x768.jpg 1024w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/2024_event_4-1536x1152.jpg 1536w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/2024_event_4-2048x1536.jpg 2048w\" sizes=\"(max-width: 768px) 100vw, 768px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ed9449b e-con-full e-flex e-con e-child\" data-id=\"ed9449b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f1accc6 elementor-widget elementor-widget-text-editor\" data-id=\"f1accc6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><strong>31 mai 2024<\/strong><\/p>\n<p><strong>Montr\u00e9al (Qu\u00e9bec)<\/strong><\/p>\n<p>Le 31 mai 2024, la premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT s&rsquo;est tenue avec succ\u00e8s sous la direction du comit\u00e9 directeur du registre CAN-ACT, avec la coordination et le soutien logistique de la Fondation canadienne du syndrome de Loeys-Dietz (FSLDC). L&rsquo;\u00e9v\u00e9nement a r\u00e9uni des chercheurs de partout au Canada et des patients partenaires, marquant une \u00e9tape importante dans l&rsquo;avancement de la collaboration nationale dans le domaine de la recherche sur l&rsquo;aortopathie h\u00e9r\u00e9ditaire.<\/p>\n<p>S&rsquo;appuyant sur une ann\u00e9e de travail pr\u00e9paratoire acharn\u00e9 du comit\u00e9 directeur pour d\u00e9finir les variables de collecte de donn\u00e9es et les questionnaires destin\u00e9s aux patients, la r\u00e9union a constitu\u00e9 un forum essentiel de validation, de dialogue et d&rsquo;innovation. Les participants ont pris part \u00e0 des discussions dynamiques, identifiant et peaufinant les questions de recherche \u00e9mergentes qui refl\u00e8tent \u00e0 la fois les priorit\u00e9s cliniques et l&rsquo;exp\u00e9rience v\u00e9cue des patients. L&rsquo;un des points forts de la r\u00e9union a \u00e9t\u00e9 la s\u00e9ance d\u00e9di\u00e9e aux patients partenaires, qui a offert un espace ouvert et percutant pour partager leurs points de vue et contribuer \u00e0 l&rsquo;\u00e9laboration d&rsquo;un programme de recherche davantage ax\u00e9 sur le patient.<\/p>\n<p>Gr\u00e2ce \u00e0 ces \u00e9changes collaboratifs, la r\u00e9union a atteint tous ses objectifs. L&rsquo;\u00e9v\u00e9nement a valid\u00e9 le cadre du registre CAN-ACT, g\u00e9n\u00e9r\u00e9 de nouvelles questions de recherche pertinentes ax\u00e9es sur les patients et mobilis\u00e9 les chercheurs pour contribuer \u00e0 l&rsquo;avenir de la recherche sur l&rsquo;aortopathie h\u00e9r\u00e9ditaire. Les participants ont \u00e9galement jet\u00e9 les bases d&rsquo;un r\u00e9seau solide et interconnect\u00e9 de chercheurs et de d\u00e9fenseurs des droits des patients canadiens, consolidant ainsi les bases d&rsquo;une collaboration nationale soutenue et de d\u00e9couvertes marquantes ax\u00e9es sur les patients.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-09172fe e-flex e-con-boxed e-con e-parent\" data-id=\"09172fe\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a2b624a elementor-widget elementor-widget-heading\" data-id=\"a2b624a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">\u00c9tablissements repr\u00e9sent\u00e9s d'un oc\u00e9an \u00e0 l'autre<\/h4>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9eb2267 e-flex e-con-boxed e-con e-parent\" data-id=\"9eb2267\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9a9743c elementor-widget elementor-widget-image\" data-id=\"9a9743c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"936\" height=\"386\" src=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/Institutions_coast_to_coast.png\" class=\"attachment-large size-large wp-image-1853\" alt=\"\" srcset=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/Institutions_coast_to_coast.png 936w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/Institutions_coast_to_coast-300x124.png 300w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/Institutions_coast_to_coast-768x317.png 768w\" sizes=\"(max-width: 936px) 100vw, 936px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9be56ad elementor-widget elementor-widget-heading\" data-id=\"9be56ad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Patients partenaires repr\u00e9sentant trois groupes de personnes atteintes d'aortopathie et de troubles du tissu conjonctif<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7aebe63 elementor-widget elementor-widget-image\" data-id=\"7aebe63\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/can-act.org\/wp-content\/uploads\/elementor\/thumbs\/three_connective_tissue_disorders-1-rdhxrb2ncwdqjbe42n7rajxjrvfhxx39ii9s4ok5c0.png\" title=\"three_connective_tissue_disorders\" alt=\"three_connective_tissue_disorders\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8511c93 elementor-widget elementor-widget-heading\" data-id=\"8511c93\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Financement de l'\u00e9v\u00e9nement<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-de72e0a elementor-widget elementor-widget-text-editor\" data-id=\"de72e0a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Cet \u00e9v\u00e9nement marquant a \u00e9t\u00e9 financ\u00e9 par la Fondation du syndrome Loeys-Dietz Canada et les Instituts de recherche en sant\u00e9 du Canada (IRSC) par l&rsquo;interm\u00e9diaire du programme de subventions de planification et de diss\u00e9mination \u2013 Soutien communautaire des instituts, t\u00e9moignant d&rsquo;un engagement commun \u00e0 faire progresser la recherche et \u00e0 am\u00e9liorer les r\u00e9sultats pour les personnes atteintes d&rsquo;aortopathies h\u00e9r\u00e9ditaires.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-37ff32c e-grid e-con-full e-con e-child\" data-id=\"37ff32c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-79b524b elementor-widget elementor-widget-image\" data-id=\"79b524b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"308\" height=\"201\" src=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/CIHR_Logo.jpg\" class=\"attachment-large size-large wp-image-1852\" alt=\"\" srcset=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/CIHR_Logo.jpg 308w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/CIHR_Logo-300x196.jpg 300w\" sizes=\"(max-width: 308px) 100vw, 308px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c3ce69 elementor-widget elementor-widget-image\" data-id=\"7c3ce69\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"559\" height=\"161\" src=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/LDSFC_Logo.jpg\" class=\"attachment-large size-large wp-image-1851\" alt=\"\" srcset=\"https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/LDSFC_Logo.jpg 559w, https:\/\/can-act.org\/wp-content\/uploads\/2024\/05\/LDSFC_Logo-300x86.jpg 300w\" sizes=\"(max-width: 559px) 100vw, 559px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-eff9224 e-flex e-con-boxed e-con e-parent\" data-id=\"eff9224\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1798023 elementor-widget elementor-widget-spacer\" data-id=\"1798023\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT 31 mai 2024 Montr\u00e9al (Qu\u00e9bec) Le 31 mai 2024, la premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT s&rsquo;est tenue avec succ\u00e8s sous la direction du comit\u00e9 directeur du registre CAN-ACT, avec la coordination et le soutien logistique de la Fondation canadienne du syndrome de Loeys-Dietz (FSLDC). [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"elementor_header_footer","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[2],"tags":[],"class_list":["post-1870","post","type-post","status-publish","format-standard","hentry","category-non-categorise"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT - CAN-ACT<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/can-act.org\/fr\/premiere-reunion-nationale-des-chercheurs\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT - CAN-ACT\" \/>\n<meta property=\"og:description\" content=\"Premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT 31 mai 2024 Montr\u00e9al (Qu\u00e9bec) Le 31 mai 2024, la premi\u00e8re r\u00e9union nationale des chercheurs du registre CAN-ACT s&rsquo;est tenue avec succ\u00e8s sous la direction du comit\u00e9 directeur du registre CAN-ACT, avec la coordination et le soutien logistique de la Fondation canadienne du syndrome de Loeys-Dietz (FSLDC). 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